Heidi, I can't believe what is going on with you Mom! Are they Doctors involved in some sort of torture experiment? Are theyall drunk? WTF? What is going on is COMPLETELY unacceptable. I'm so mad right now, I could take them all on myself and kick their collective behinds to the moon. But, I think my energies would be better placed in hoping for a good outcome and resolution.

Thanks for the update, Heidi. That's just horrible and I'm so sorry that your mom has to be put through this. Likewise, let us know if there is anything we can do or if you just need a sympathetic ear. We're here for you.

Heidi I'm so sorry about your mom. Hopefully it all gets resolved quickly with as little pain as possible.

Thanks for your support, guys. But wait. There's more. (I realized I hadn't updated you once I got a sweet PM checking in on me-- so I'll post part of my response here.)

Mom's doctor and his team were complete assholes yesterday. They told her she could come into the office for an appointment on Friday. She freaked out on them (rightfully) saying she demanded to talk to the doctor.

When he finally deigned to get on the phone, he told her that he refused to believe that she dropped 100 points in a week's time, and he was going to send another nurse out for a blood test today.

He said to take the same low-dose steroid she was on. She didn't listen to him, thankfully, and took 6x the normal dose (which he'd told her to do in the past when she was low.) And after her test today, she'd only risen a whoppin' 2 points. She's got internal bleeding bruises (petichae) all over her body, and STILL the doctor-- who's the only blood specialist in town-- refuses to see her until Monday.

SO aggravating.

But she's making jokes about their stupidity and dosing herself however she thinks she needs to be dosed (after 10 years, she's better at it than the doctors) and provided there isn't some kind of additional infection or something causing this drop, she should gradually climb to a better level. God damn those doctors, though.