Thread: Soooo....
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Old 07-11-2007, 10:31 PM   #11145
wendybeth
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Just got home from the HP movie, and there was a message on the phone from Tori's doc. (They never get back to us this quick!) They reviewed her x-ray and determined that she is probably a candidate for the physical therapy program, which is good news in that they might have caught this early enough for therapy to be beneficial. She is still lining her up with an ortho specialist, but I am happy that they are getting right on this and moving quickly. I am feeling a bit relieved, but don't want to let down completely until I know for sure the degree of damage. We're still doing the genetic testing, because we think she has too many of the markers for Marfan's to ignore, and Trudy thinks perhaps (for a variety of good reasons) it might be something on Eric's dad's side- Tori's aunt also has a lot of the same problems, and if something turns up we can have her and Eric tested as well.

So, thank you all for your hugs and well wishes- it means a lot, and I appreciate your letting me vent. Tori is such a great kid- she knows I'm worried, even though I try not to let on, and she has gone out of her way to be silly and cheerful to try to make me feel better. I'm really very lucky to have such a cool girl, and to have such good friends.
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