Quote:
Originally Posted by innerSpaceman
Just as aside, this is not always a bad thing. If my friend Ginny (with the giant brain tumor) hadn't been in charge of and on top of her own care, she'd have been dead six times over.
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Ditto that, iSm, in terms of my mom. The coumadin clinic actually consults HER as to what she should be taking - after eleven years with an auto-immune disease and 28 years dating DVT-preventative medication, her charts and graphs give her way more perspective than the docs. And whenever she goes to the hospital, her very tricky medical cocktails (none anti-depressive, but most required due to side effects from the steroids - which, if she weren't taking them, she'd die right away) always get mixed up, and it's up to her in her ill state to realize they're mis-medicating her. This is why - hmm, I haven't talked about this on the board yet - this is why she is no longer seeking actual treatment and refuses hospital stays even though she's frequently bleeding internally and lately passes an average of 2 kidney stones per day.